Five years ago I gave birth to my third child. It was
a girl and I was delighted. She never slept through the night. Her
pediatrician told us it was colic and reflux. However, nothing soothed
her. Night after night, she would scream and cry, and all I could do was
hold her and rock her. My husband and I would take turns. Finally, after
about three hours of crying, she would fall asleep for a while, but she
never developed a definite sleep pattern.
As she grew older and became more verbal, the crying
at night turned into more of a fight in her sleep. She never woke during
these crying fits. I began to think she might be suffering from some
sort of seizure disorder. Her pediatrician agreed to have testing done
on her, and all the tests came back normal. But she was still having
fits at night, sometimes screaming at the top of her lungs. I was
terrified at what was happening to her. She was just a baby. I wanted to
help her so badly, but there was nothing I could do. I tried everything.
If I got close to her, she kicked and hit and she wasn't even awake.
This continued every night. I knew there was something seriously wrong.
At about 16 months, she began to have temper tantrums
that lasted for several hours. As she got older, they became more
severe. She began to throw things, hit kick, spit, anything she could
do. She never wanted to be in her car seat – she would try to get out
and punch me in the head while I was driving, nearly causing a car
accident. At this point she was about two years old.
We kept taking her back to her pediatrician, and we
were told it was the "terrible twos." When she turned three,
it was called the "treacherous threes." The pediatrician did
say there might be something wrong, but he didn’t want to label a
child with anything severe until he was sure it wasn't a developmental
issue.
Despite my cries for help, my daughter’s rages
continued to get worse. Finally when she was three years old, I found a
nurse practitioner who diagnosed her with bipolar disorder. The nurse
explained that the sleep disturbances that looked like seizures were
actually night terrors.
We were unable to continue treatment with the nurse
because we were never able to make it to appointments. My daughter would
pour water all over herself (in the middle of winter) or take off her
clothes and kick and fight about getting in her car seat, or anything
that would prevent us from leaving. I had to chase her all over the
house, inside and out. One day she was in the car with me, driving down
a highway at 50 mph. She got out of her car seat, began to hit me, and
as I was trying to pull over, she opened up the car door to jump out.
She was laughing the entire time but also being very angry and
aggressive toward me. I managed to pull over safely, hanging on to her
for dear life.
We were lucky enough to find another good therapist
and psychiatrist. This began the endless search for a medication
combination that was effective. She went through trials of medications
that I can't even name here because there were so many. We soon found
that we had to learn a new language, because "no" was a
trigger to set her off in to a rage. Lack of results led us to
hospitalize her. She had made several more attempts to jump out of a
moving vehicle, which pretty much confined us to the home. The final
straw was when she was outside playing while her father was mowing the
grass. In a second, before he could stop her, she had run into the
garage, gotten the gasoline for the mower and dumped it all over
herself.
She spent three weeks in the hospital. It was a
structured environment, and we were only allowed to visit her for an
hour a day. It was horrible being away from her – she’s our baby.
But we knew it had to be this way until she received treatment that got
her symptoms under control. Eventually she was prescribed an
antipsychotic and a medication for ADHD. All in all, it has helped, but
we still struggle with different doses and different combinations
because she hasn't been responding well. What seemed to work at first
still needs fine-tuning.
She doesn't suffer from the night terrors any longer,
but the aggression, impulsiveness and hyperactivity are still a problem.
She is now five years old and weighs 80 pounds. That is another health
hazard, since she is very strong and can throw a coffee table about five
feet across the room. We have found the treatment called sensory
integration to be very helpful. We now have a physical therapist and
occupational therapist who work with her to develop strength in her weak
areas. We are still in the process of exploring different medication
options.
My daughter has a long road to travel in life, and I
hope, as time goes on, more options will be available to treat her. I am
optimistic, since we have made it this far. I am determined to find the
answer out there somewhere for her. She deserves a fair chance at life.