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Guide to Depression and Bipolar Disorder
You
are not alone
Depression
and bipolar disorder (also known as manic-depression) are both highly treatable medical illnesses. So why do so few people get the
treatment they need? There are many reasons, but one of the main ones is
the lack of accurate information patients and their families can
understand. Many people think that these illnesses will go away by
themselves or that getting help is a sign of weakness or moral failure.
These views are incorrect. That’s why DBSA created this guide.
This
booklet will discuss depression and bipolar disorder, their symptoms and
their treatments. It will provide general guidance on the best resources
and support. It will also inform you about DBSA, its mission and its
nationwide network of patient and family support groups. Part of
DBSA’s mission is to help you help yourself – whether you have one
of these illnesses or know someone who does. Reading this Guide
to Depression and Bipolar Disorder is one of the first steps on the
road to recovery.
DBSA,
its advisors and consultants do not endorse or recommend the use of any
specific treatments or medications listed in this publication. For
advice about specific treatments or medications, individuals should
consult their physicians and/or mental health professionals.
If
you are thinking about death or suicide, go to a hospital emergency
room, or contact a medical professional, clergy member, loved one or
friend immediately!
Depression
It’s
Not Just in Your Head
Everyone,
at various times in life, feels sad or “blue.” It’s normal to feel
sad on occasion. Sometimes this sadness comes from things that happen in
your life: you move to a different city and leave behind friends, you
lose your job or a loved one dies. But what’s the difference between
“normal” feelings of sadness and the feelings caused by clinical
depression?
While
it’s normal for people to experience ups and downs during their lives,
those who have clinical depression experience specific symptoms daily
for two weeks or more, making it difficult to function at work, at
school and in relationships.
Clinical
depression is a treatable medical
illness marked by changes in mood, thought and behavior. That’s why
doctors call it a mood disorder. In
this booklet, the term “depression” is used to refer to clinical
depression.
How
to Recognize Depression
Depression
is not a character flaw or sign of personal weakness. You can’t make
yourself well by trying to “snap out of it” or “lighten up.” And
you can’t catch it from someone else, although it can run in families.
To understand what depression is, it’s important to recognize the
symptoms:
-
Prolonged
sadness or unexplained crying spells
-
Significant
changes in appetite and sleep patterns
-
Irritability,
anger, worry, agitation, anxiety
-
Pessimism,
indifference
-
Loss
of energy, persistent lethargy
-
Unexplained
aches and pains
-
Feelings
of guilt, worthlessness and/or hopelessness
-
Inability
to concentrate, indecisiveness
-
Inability
to take pleasure in former interests, social withdrawal
-
Excessive
consumption of alcohol or use of chemical substances
-
Recurring
thoughts of death or suicide
If
you or someone you know has thoughts of death or suicide, contact a
medical professional, clergy member, loved one or friend immediately.
If
you experience five or more of these symptoms for more than two weeks or
if any of these symptoms interfere with work or family activities,
contact your doctor for a thorough examination. This includes a complete
physical exam and a review of your family’s history of illness. Do not
try to diagnose yourself. Only a health care professional can determine
if you have depression.
Types
of Depression
It
is now believed that depression is the sign of an imbalance in brain
chemicals called neurotransmitters.
Although the direct causes of the illness are unclear, it is known that
body chemistry can bring on a depressive disorder, due to the presence
of another illness, altered health habits, substance abuse or hormonal
changes.
People
who have major depressive
disorder have had at least one major
depressive episode – five or more symptoms for at least a two-week
period. For some people, this disorder is recurrent, which means they
may experience episodes every so often: once a month, once a year or
several times throughout their lives. Each person is different.
Dysthymia
is a chronic, moderate type of depression. People with dysthymia usually
suffer from poor appetite or overeating, insomnia or oversleeping, and
low energy or fatigue. People with dysthymia are often largely unaware
that they have an illness because their functioning is usually not
greatly impaired. They go to work and manage their lives, but are
frequently irritable, always complaining about stress or not getting
enough sleep.
Who
Gets Depression?
People
of all ages, races, ethnic groups, and social classes have the illness.
Although it can occur at any age, depression frequently develops between
the ages of 25 and 44. More women experience depression than men.
Children
and Depression
As many as one in 33 children and one in eight adolescents has
depression. If your child has five or more symptoms for at least two
weeks and it interferes with his or her daily activities (e.g., going to
school, playing with friends), then your child may be clinically
depressed. Other warning signs of childhood depression include
headaches, frequent absences from school, social isolation and reckless
behavior.
Childhood
depression is not caused by
poor parenting. It may have many origins – genetics, biochemistry and
a variety of other factors. Fortunately, treatment for childhood
depression is highly effective.
Depression
and the Elderly
Depression
is not a normal part of aging. However, of the 32 million Americans over
the age of 65, nearly five million experience serious symptoms of
depression and one million suffer from a major depressive disorder.
Elderly people with untreated depression are more likely to have worse
outcomes from co-existing medical illnesses. Untreated depression is the
most common psychiatric disorder and the leading cause of suicide among
the elderly.
Women
and Depression
If
you are a woman, you are almost twice as likely as a man to experience
depression. In fact, one in four women will experience clinical
depression in her lifetime. The hormonal and life changes associated
with menstruation, pregnancy, miscarriage, the postpartum period and
menopause may contribute to or trigger depression. The lifetime
prevalence of major depression is 24 percent for women; for men, it’s
15 percent.
Postpartum
Depression
Many
women feel especially guilty about having depressive feelings at a time
when they should be or are expected to be happy. It’s extremely
important to talk about postpartum feelings, as untreated postpartum
depression can affect the mother-child relationship and, in severe
cases, may put the infant’s and/or mother’s life at risk.
One
in ten mothers meets the criteria for depression in the postpartum
period. Although most of these women have only depression, a rare few
develop postpartum psychosis – symptoms of depression and mania
appearing in the postpartum period. Both require immediate treatment
when symptoms appear.
Depression
and Other Illnesses
Depression
often co-exists with other mental or physical illnesses. Substance
abuse, anxiety disorders and eating disorders are particularly common
mental conditions which may be worsened by depression, and vice versa.
Research is currently being done into the relationship between
depression and physical illnesses. Several recent studies have noted
that when co-existing depression is treated, prognoses are substantially
improved for conditions such as heart disease, AIDS, cancer,
Parkinson’s disease and diabetes. It is important to tell your doctor
about all of the symptoms you are experiencing and all other illnesses
for which you are receiving treatment.
The
Good News
Of
all psychiatric illnesses, depression is one of the most responsive to
treatment. With proper care, approximately 80 percent of people with major depression
demonstrate significant improvement and lead productive lives – even
those with severe depression can be helped. That’s why it’s crucial
to learn about the symptoms of depression and act promptly.
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Bipolar
Disorder
More
Than A Mood Swing
Bipolar
disorder, also known as manic-depression, is a treatable medical illness
marked by extreme changes in mood, thought, energy and behavior. A
person’s mood can alternate between the “poles” of mania
and depression. This
change in mood or “mood swing” can last for hours, days, weeks or
even months.
Bipolar disorder affects more than two million adult Americans. Like
depression and other serious illnesses, bipolar disorder can also
adversely affect spouses, family members, friends and people in the
workplace. It usually begins in late adolescence (often appearing as
depression during teen years) although it can start in early childhood
or as late as the 40s and 50s. An equal number of men and women develop
this illness and it is found among all ages, races, ethnic groups and
social classes. The illness tends to run in families and is inherited in
many cases.
Bipolar disorder differs significantly from clinical depression,
although the symptoms for the depressive phase of bipolar disorder are
similar to those listed above.
Mood swings that come with bipolar disorder can be severe, ranging from
extremes in energy to deep despair. The severity of the mood swings and
the way they disrupt normal activities distinguish bipolar mood episodes
from ordinary mood changes.
Unlike people with clinical (unipolar) depression, most people who have
bipolar disorder talk about experiencing the “highs” and “lows”
of the illness. The “highs” are periods of mania or intense bursts
of energy or euphoria.
Symptoms
of Mania
-
Increased
physical and mental activity and energy
-
Heightened
mood, exaggerated optimism and self-confidence
-
Excessive
irritability, aggressive behavior
-
Decreased
need for sleep without experiencing fatigue
-
Grandiose
delusions, inflated sense of self-importance
-
Racing
speech, racing thoughts, flight of ideas
-
Impulsiveness,
poor judgment, distractibility
-
Reckless
behavior such as spending sprees, rash business decisions, erratic
driving and sexual indiscretions
-
In
the most severe cases, delusions and hallucinations
These
“highs” and “lows” are frequently seasonal. Many people who have
bipolar disorder report feeling symptoms of depression during fall and
winter, and symptoms of mania and/or hypomania (a less severe form of
mania) during spring.
Types
of Episodes
-
Manic
Episode: A
distinct period of persistently elevated, expansive, or irritable
mood, lasting at least one week. During this period, three or more
symptoms of mania must be present.
-
Major
Depressive Episode: A
period of two weeks or more during which five or more symptoms of
depression are present.
-
Hypomanic
Episode: Similar
to a manic episode, except that delusions or hallucinations are not
present and it is less severe. Must be clearly different from the
individual’s typical nondepressed mood, with a clear change in
functioning and observable behaviors that are unusual or
out-of-character.
-
Mixed
Episode When
symptoms of a manic and a major depressive episode are both present
every day for at least a one week period.
-
Rapid
Cycling Four
or more manic, hypomanic, mixed or depressive episodes in any
12-month period.
Types
of Bipolar Disorder
Different types of bipolar disorder are determined by patterns of
symptoms or episodes. The main types of bipolar disorder are:
Bipolar
I Disorder
-
One
or more manic episodes or mixed episodes and, often, one or more
major depressive episodes.
-
Depressive
episode may last for several weeks or months, alternating with
intense symptoms of mania that may last just as long.
-
Between
episodes, there may be periods of normal functioning.
-
Symptoms
may also be related to seasonal changes.
Bipolar
II Disorder
-
One
or more major depressive episodes accompanied by at least one
hypomanic episode.
-
Hypomanic
episodes have symptoms similar to manic episodes but are less
severe.
-
Between
episodes, there may be periods of normal functioning.
-
Symptoms
may also be related to seasonal changes.
Cyclothymic
Disorder
-
Chronic,
fluctuating mood disturbance involving periods of hypomanic symptoms
and periods of depressive symptoms.
-
Milder
form of bipolar disorder; the periods of both depressive and
hypomanic symptoms are shorter, less severe, and do not occur with
regularity.
-
Many
but not all people with cyclothymia may ultimately develop a more
severe form of bipolar illness.
Bipolar
Disorder NOS (Not Otherwise Specified) Includes
disorders with bipolar features that do not meet criteria for any of the
above specified disorders. For example:
-
Having
recurrent hypomanic episodes without depressive symptoms.
-
Having
very rapid alternation between symptoms of mania and depression that
do not meet the criteria for a manic episode or major depressive
episode.
What
Causes Bipolar Disorder?
Research
has shown the presence of bipolar disorder indicates an imbalance in
brain chemicals called neurotransmitters.
Although the direct cause of the illness is unclear, it is known that
genetic, biochemical and environmental factors each play a role. Body
chemistry can bring on a depressive or manic episode, due to the
presence of another illness, altered health habits, stress, substance
abuse, or hormonal changes. In addition, studies have shown that the
illness often runs in families, and that stressful life experiences can
trigger some symptoms.
The
Importance of Recognizing Mania
When
symptoms of mania are untreated, they can lead to life-threatening
situations. For example, a woman with mania was injured after crashing
her car. She was traveling at a high speed because she thought she was a
race car driver. A man with mania impulsively invested his life savings
in the stock market – and lost it all. These behaviors vary from
person to person, but are typical of untreated bipolar disorder. Other
behaviors include excessive spending, sexual indiscretions and excessive
gambling.
Erratic
behavior alone does not mean that someone has bipolar disorder, but when
a combination of symptoms appears for longer than one week, one should
see a mental health professional for immediate evaluation.
Unfortunately, many people with symptoms delay seeking professional
help. The average length of time between the onset of bipolar symptoms
and a correct diagnosis is ten years. There is real danger involved in
leaving bipolar disorder undiagnosed, untreated or undertreated –
people with bipolar disorder who do not receive proper help have a
suicide rate as high as 20 percent.
When
It Runs in the Family
Although
the exact cause of bipolar disorder is unknown, numerous medical studies
indicate that it runs in families. More than two-thirds of people with
bipolar disorder have at least one close relative with the illness or
with unipolar major depression, indicating that the illness is
hereditary.
Even
though bipolar disorder may be considered a family illness, there is no
way to predict how it will affect other family members. Concerned
families should consult their physicians if they have questions about
symptoms and should also request a screening for mood disorders at their
annual medical check-up. DBSA recommends this kind of screening as part
of every individual’s health regimen or annual physical check-up,
whether there is a history of mood disorders in the family or not.
The
Child with Bipolar Disorder
There
is a startling lack of research about the early onset of bipolar
disorder in children. Children as young as three have been diagnosed
with it, and more children than ever are exhibiting symptoms. Symptoms
of bipolar disorder can emerge as early as infancy. Mothers often report
that children later diagnosed with the disorder were extremely difficult
and slept erratically. They seemed extraordinarily clingy, and from a
very young age often had uncontrollable, seizure-like tantrums or rages
out of proportion to any event. The word “no” often triggered these
rages.
As
with depression, the priority for parents who think their child may have
bipolar disorder is to get a correct diagnosis. Early, accurate
diagnosis and treatment are crucial to a child’s development if he or
she has a mood disorder.
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Treatment
Sometimes,
it’s hard to ask for help. If you or someone you know has a mood
disorder, you may be feeling especially vulnerable, and talking to
someone about it may be the last thing you want to do. But finding the
right treatment is the first step in becoming an active manager of an
illness like depression or bipolar disorder. Finding the right treatment
starts with finding the right mental health professional.
Choosing
a Doctor
Your
primary care doctor may be able to treat your mood disorder, or he or
she may refer you to a mental health professional. If you don’t have a
primary care or family physician who can refer you to a mental health
professional, ask trusted friends, relatives or DBSA support group
members if they know of one. Also, contact your insurance company or
community mental health center to find providers available to you.
It’s
important that you feel confident in your doctor’s knowledge, skill,
and interest in helping you. You should never feel intimidated by your
doctor or feel as if you’re wasting his or her time. If you have a
problem communicating with your doctor or you feel uncomfortable in any
way, consider getting a second opinion from another doctor or changing
doctors. We use the term “doctor,” even though your mental health
care provider may be a therapist, social worker or registered nurse. If
you and your provider decide medication is the best course of treatment,
remember that only a medical doctor can prescribe medication.
A
skilled and interested doctor should address most of your concerns, but
there may be questions left unanswered. Don’t leave the doctor’s
office until all of your questions and concerns have been addressed. If
you need to, write down all of your questions before the office visit.
Don’t be embarrassed to bring up any subject. Bring along a friend if
it makes you feel more comfortable or ask your questions in the
doctor’s office rather than the examining room.
Be
Sure Your Questions are Answered
Here
are some questions you will want to ask your doctor. You may want to
write down some of your own, or take this booklet with you to your
appointment.
-
What
dosage of medication should you take, at what time of day, and how
can you increase your dosage if this is to be done before your next
visit? (Take notes if this is complicated.)
-
What
are the possible side effects of your medication( s) and what should
you do if you experience a side effect? (Ask for printed materials.)
-
How
can you reach your doctor if you experience any severe side effects
or worsening of your condition? (Be sure you leave the doctor’s
office with an emergency phone number to reach your doctor.)
-
How
can you identify early symptoms of an episode and how should you
respond to them? (For example, sleeplessness can trigger mania.
Treat it as a new symptom and discuss it with your doctor.)
-
How
long should it take to feel improvement and what type of improvement
should you expect?
-
What
are the risks associated with this treatment and, how can you
recognize them? If you have any concerns, share them with your
doctor.
-
How
long will it be necessary to take your medication?
-
If
the medication needs to be stopped for any reason, how should this
be done?
-
How
often will you need to see your doctor? How long will your
appointments take?
-
Is
psychotherapy recommended as part of your treatment? If so, what
type?
-
Are
there things you can do to improve your response to treatment? Are
there activities you should avoid in order to increase your
likelihood of improvement?
-
If
this medication isn’t helpful, are there alternative treatments?
What might they be?
-
If
someone questions why your doctor prescribed medication, or raises
doubts about possible dangers of taking medication, how should you
respond?
Taking
Medication
“I
refuse to rely on a pill to solve my problems.” Many
of us have had the same reaction when told we have a mood disorder. How
can a pill improve our attitude toward life? Why can’t we just
“learn to be happy”?
Remember,
depression and bipolar illness are disorders in the function of the
brain. You are not experiencing the symptoms of these illnesses because
you are a bad person or are lacking in any way. Would you consider
people with diabetes to be “lacking” because their body’s
inability to produce insulin leaves them tired and nervous?
The
choice to take medication is entirely yours, but know that many people
with mood disorders have significantly improved their lives and have
saved themselves from years of pain and self-destruction because
they’ve adhered to a treatment plan that includes medication. Though
medication does not guarantee all your problems will be solved, the
right one can improve your ability to cope with life’s problems and
restore your sense of judgment.
The
Food and Drug Administration (FDA) has approved dozens of medications to
treat mood disorders. These medications belong to various classes; each
one has a distinct chemical structure that acts on different receptors
in the brain, offering different benefits. Because everyone is
different, DBSA does not advise or endorse any particular medication or
treatment. However, you should know that all FDA-approved medications
for mood disorders work – they just don’t work the same for everyone. Careful consultation
with your doctor is extremely important when deciding what medication to
take. Know what you’re taking, why you’re taking it, how long you
may have to take it, what side effects are possible, and if the
medication interacts with other prescription drugs, over-the-counter
drugs or dietary supplements. You are entitled to, and should, ask as
many questions as you need to feel comfortable.
What
to Expect When Taking Medication
Medication
is prescribed to relive a person’s symptoms. You don’t have to
experience all the symptoms listed in this brochure to have depression
or bipolar disorder. Work with your doctor to determine a treatment
strategy that is most likely to ease your particular symptoms.
Antidepressants
are usually prescribed for depression. Several different medication
trials or a combination of medications may be necessary to achieve
sufficient improvement and avoid troublesome side effects. Keeping your
own treatment records, including the medication, dosages used, length of
time taken, and positive or negative experiences, can be very important
in helping your doctor decide what medications to prescribe.
Symptoms
of depression may lessen, and ideally disappear, with the right
medication. You should expect to feel relief within two to eight weeks,
although a full response sometimes takes 12-16 weeks. And remember:
sometimes it’s necessary to take more than one medication to achieve
the desired result.
With
bipolar disorder, symptoms of mania and depression are usually
stabilized by mood stabilizers, which can take up to two weeks to
achieve full effect. Dosage may be lessened or increased to fine tune
treatment, depending on your doctor’s evaluation. In addition, your
doctor may add another medication to your course of treatment, depending
on your symptoms. A mood stabilizer is sometimes prescribed with an
antidepressant or antipsychotic.
Despite
reports to the contrary, medications for mood disorders are not
addictive or personality-changing, although you may experience feelings
of withdrawal when going off a medication. Never stop taking your
medication without talking to your doctor first.
Alternative
Treatments
DBSA
recognizes that dietary supplements and other alternative treatments
that are advertised to have a positive effect on depression or bipolar
disorder regularly enter the marketplace. These alternative treatments
include Omega-3,
St. John’s
wort, SAM-e and others. Because of
the lack of scientific data, DBSA does not endorse
or discourage the use of
these treatments. However, people should be aware that natural is not
always synonymous with safe. Different brands of supplements may contain
different concentrations of the active substance, and these alternative
treatments may have side effects or interact with your prescribed
medications, so read labels carefully and discuss them with your doctor
or pharmacist.
DBSA
supports clinical research into alternative treatments and advises that
anyone with a mood disorder consult their physician and/or mental health
professional before undergoing or modifying any treatment.
Electroconvulsive
Therapy (ECT)
This
treatment is intended for people with severe symptoms of depression or
sometimes mania. When medications and psychotherapy fail to adequately
lessen symptoms, ECT can be a safe and effective alternative treatment.
ECT is never forced upon people or used as a means of submission.
Mild
electrical stimulation to the brain causes brief seizures which, in
turn, relieve the depression. Muscle relaxants are administered to the
anesthetized person to eliminate shaking. An average of
six to 12
treatments over a three- to
four-week period are usually required. After successful treatment,
subsequent depressive episodes may be managed by antidepressants or less
frequent maintenance doses of ECT. Like all treatments, ECT has
potential side effects. Although there have been reports of memory
disturbances, most ECT patients feel that the benefits far outweigh the
prospect of suffering from long-term severe, unremitting depression.
This is especially true for suicidal patients who may otherwise have
carried out their impulses if they had waited for medication therapy to
take effect.
Light
Therapy
The
absence of full-spectrum light – light that contains all the
wavelengths of natural sunlight – can cause Seasonal
Affective Disorder (SAD), a form of depression which typically
develops during fall and winter then goes away during late spring and
summer. In about half of mild or moderate cases of SAD, symptoms can be
effectively treated by light
therapy, a treatment that exposes patients to a type of
full-spectrum light which compensates for daylight loss. Check with your
mental health professional about the type of light source to use for
this treatment.
Psychotherapy
Psychotherapy
or “talk therapy” is an important part of treatment for many people.
It can sometimes work alone in cases of mild to moderate depression.
People who are severely depressed may not be able to benefit from
psychotherapy until their symptoms have been lifted through another
means of treatment. People with bipolar disorder and/or chronic
depression usually benefit from a combination of medication and talk
therapy. A good therapist can help you modify behavioral or emotional
patterns that contribute to your illness. There are several types of
psychotherapy: interpersonal, cognitivebehavioral, group, marriage and
family, to name a few. Research the different types to find the one you
feel is most appropriate for you. Psychotherapists, although
highly-educated professionals, are not medical doctors and therefore
cannot prescribe medication.
Develop
a Wellness Lifestyle
Keep
the following in mind as you discover your own ways to reduce symptoms
and maintain wellness:
-
Regularly
talk to your counselor, doctor or other health care professional.
-
Share
talking and listening time with a friend.
-
Do
exercises that help you relax, focus and reduce stress.
-
Participate
in fun, affirming and creative activities.
-
Record
your thoughts and feelings in a journal.
-
Create
a daily planning calendar.
-
Avoid
drugs and alcohol.
-
Allow
yourself to be exposed to light.
-
Improve
your diet. Avoid caffeine, sugar and heavily salted foods.
-
Change
the stimulation in your environment.
-
Attend
a local DBSA support group regularly.
When
Hospitalization is Required
In
some cases of severe depression or bipolar disorder, physicians may
recommend hospitalization for a number of reasons: medication side
effects may render one temporarily incapable of safe self-care; a drug
wash (discontinuing medication) may require a period of controlled
observation; or attempted suicide or severe manic episodes may require
treatment in a safe, controlled environment. If hospitalization is
recommended, be sure to ask questions about the course of treatment and
the estimated length of the stay. Also, be sure to check with your
health care provider or insurance company about the type of coverage
provided.
People
are not always willing to be hospitalized. Those who are unable to take
care of themselves, or who appear to be a threat to themselves or
others, must be admitted involuntarily. For information on your
state’s legal procedures, contact a psychiatrist, your state’s
attorney’s office, the police or the hospital emergency room.
Involuntary commitment is rare, but could prove to be life-saving.
Clinical
Trials
Clinical
trials are research studies involving patients, which are created and
designed to answer specific scientific questions. By participating in a
clinical trial, you could help advance scientific knowledge about mood
disorders and their treatments. However,
taking part in a trial does not guarantee you individual benefits in the
form of newer or safer treatments. It is very important that you
understand the potential risks of participation before agreeing to take
part in a trial. Consult your physician when deciding whether or not the
trade-offs involved with a clinical trial are reasonable for you.
When
participating in a clinical trial, you may also want to find out whether
there is a possibility of being assigned an inactive pill, or placebo,
and whether the experimental treatments will be available to you when
the trial is over.
Treatment
Challenges
During
the last 30 years, advances in treatment have helped many people
suffering from depression and bipolar disorder. However, at least 15
percent of those with a mood disorder do not respond to any treatment.
As
with any life-long illness, persistence and self-education are essential
if you are living with a mood disorder. Don’t give up hope. There are
many new medications and treatments under development. If treatment is
not successful, continue to work with your doctor on a plan for living.
Don’t try to self-medicate by adjusting your own dose, combining
medications without your doctor’s permission or abusing alcohol or
illegal drugs.
Treatment
challenges can be frustrating, and many of us have been there. Remember
that this difficult point is just one step on the road to recovery, not
a factual statement about your life or a prediction of the future. Keep
moving forward to find the help you need – support is out there!
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Support
Reaching
Out for Help
When
someone is diagnosed with a mental illness, the first reaction he or she
sometimes has is fear – What should I do? Why did this happen to me?
What’s wrong with me? Sometimes, the fear goes deeper. The person may
feel he or she is “broken” or not good enough. This fear usually
comes from stigma.
What
is stigma? Webster’s Dictionary defines stigma
as a mark of shame or discredit: a stain. The fear a newlydiagnosed
person sometimes feels comes from the stigma society places on mental
illness. People with mood disorders not only have to manage their
symptoms, but have to adjust to a new awareness that others may think or
say they are “crazy.” Devaluing mental illness is not acceptable.
Don’t let this prevent you from getting help. Your illness does not
define who you are.
Taking
Control of Your Illness
As
with other chronic illnesses such as diabetes, heart disease or asthma,
people with mood disorders should see themselves as managers of their
illness. Depression and bipolar disorder are treatable
medical illnesses, but they are not curable. It may very well happen
that the initial treatment you receive will be the only time in your
life you need medication for your disorder. For many, though, severe
depressive and/or manic episodes reappear at some point in life. If this
happens, don’t panic. Your experience with previous episodes puts you
one giant step ahead in the process of recognizing symptoms and getting
help. Some people are treated briefly, and finish treatment with their
physician and/or mental health professional in less than one year. For
others, daily medication and periodic visits to the psychiatrist become
a part of life. By continuing your treatment plan, you can greatly
reduce your chances of having symptoms recur.
Telling
Others About Your Illness
You
may be concerned about people “finding out” about your illness or
what people might think of you once they know you have a mood disorder.
It is your personal choice whether or not to disclose your diagnosis to
anyone other than your mental health professional.
Most people will appreciate your honesty, and you will help them
understand how to respond to your fluctuations in mood and behavior.
Because your illness or medication side effects may impair your
functioning, employers may need to be alerted – especially if your job
involves the safety of others.
Disclosure
may be especially difficult for people with psychiatric disabilities. An
employee is not required to disclose all the details of his or her
illness – only those necessary to demonstrate eligibility for an
accommodation under the Americans with Disabilities Act (ADA), and only
if an accommodation is needed. Moreover, the employee may request
confidentiality, a right protected by the
ADA
. It is in a company’s best
interest to safeguard your mental health and to offer reasonable
accommodations. Untreated mood disorders lead to absenteeism,
work-related injuries and lost productivity. Share this booklet with
your employer or contact DBSA for other resources.
Self-Care
Maintaining
good health is not a cure, but it can tremendously affect your overall
sense of wellness. A good diet, exercise and regular sleep habits can
help you feel better. On the other hand, factors that contribute to mood
disorders include poor sleep habits, vitamin deficiencies, stress, other
illnesses and their treatments, drug interactions, food sensitivities,
improper metabolism, social isolation and substance abuse.
Alcohol
and illegal drugs may be tempting ways to cope with stress. However,
they are especially harmful when coping with a mood disorder. Abusing
them may make your symptoms worse, and can alter the effectiveness of
medication you are taking. If you are having trouble stopping your use
of alcohol or illegal drugs, talk to your health care provider or a
trusted friend or family member. You can also contact Alcoholics
Anonymous or other 12-step groups, whose phone numbers can be found in
your local telephone book.
You
may find it helpful to keep a journal to chart your activities,
nutrition, health and for women, your menstrual cycle to determine
possible contributing factors to your mood disturbances and share your
journal with your health care provider.
The
Value of DBSA Support Groups
With a grassroots network of
DBSA chapters and support groups, no one with depression or bipolar
disorder needs to feel alone or ashamed. DBSA may offer one or more
support groups in your area. Each group has a professional advisor and
appointed facilitators. Members are people and loved ones of people
living with depression or bipolar disorder. As a complement to formal
therapy, DBSA support groups:
-
Can
help increase treatment compliance and may help patients avoid
hospitalization.
-
Provide
a forum for mutual acceptance, understanding and self-discovery.
-
Help
consumers understand that mood disorders do not define who they are.
-
Give
people the opportunity to benefit from the experiences of those who
have “been there.” Take the next step toward wellness for you or
someone you love.
Contact
DBSA to locate the support group nearest you. If there is no group in
your community, DBSA can help you start one. available at your local
library.
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Suicide
Prevention
If
you are having suicidal thoughts, it is important to recognize these
thoughts for what they are: expressions of a treatable medical illness.
Don’t let embarrassment stand in the way of vital communication with
your doctor, family and friends; take
immediate action. You can take important first steps to manage these
symptoms.
-
Tell
your mental health professional immediately.
-
Tell
a trusted family member, friend, or other support person.
-
Regularly
schedule health care appointments.
-
Instruct
a close supporter to take your credit cards, checkbook, and car keys
when suicidal feelings become persistent.
-
Make
sure guns, other weapons, and old medications are not available.
-
Keep
pictures of your favorite people visible at all times.
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For
Family and Friends
Living
with a person who has depression or bipolar disorder can be a great
challenge. As a family member, friend or trusted supporter, it’s
important to stay informed about the illness and your loved one’s
progress so that you will know when to help and when to leave matters
alone. For instance, forcing a person with severe depression to see
visitors could add seriously to his or her anxiety level instead of
lifting spirits. On the other hand, letting a person stay isolated too
long during a serious depression could be dangerous if he or she has
exhibited signs of suicidal thoughts.
With
someone prone to manic episodes, try to set rules during periods of
stable mood and discuss safeguards such as when to withhold credit
cards, banking privileges or car keys. Like suicidal depression,
uncontrollable mania may endanger a person’s life. Hospitalization may
be helpful in both cases.
If
possible, take turns “checking in” so that one family member or
supporter isn’t overburdened. Alleviate stress by focusing on other
family events and activities. If there are young children or teens in
the home, explain that the person has a medical illness that requires
continuous attention and love – and that it’s not the result of
something the young person has done.
When
recovery from severe symptoms begins, let the person approach life at
his or her own pace. Try to do things with your loved one, rather than
force him or her, so that self-confidence can be regained. Remember that
having a serious mental illness may damage a person’s self-esteem, and
it will take time for the person to become comfortable again at home, at
school, among friends and at work.
Treat
the person the same way you always have as he or she recovers, but watch
for a possible recurrence of symptoms; you may notice recurrences before
he or she does. With a caring manner, you can help by suggesting a visit
to a mental health professional.
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Did
You Know?
According
to the National Institute of Mental Health, more than 23 million adults
in the
United States
are diagnosed with depression or
bipolar disorder – that’s one out of every ten people.
Depression
commonly co-occurs with other illnesses: 50 percent of people with heart
disease, 25 percent of people with cancer, and 10 to 27 percent of
people who have had a stroke also have depression.
41
percent of people with bipolar disorder abuse alcohol or drugs when
their illness is not being successfully managed compared to 13 percent
when the illness is being successfully managed.
Economic
Cost of Depression Fact: Depression and mood disorders cost $43 billion
each year.
Mortality
Costs $7.5 billion 17%
Lost
Productivity $12.1
billion 28%
Absenteeism
$11.7 billion 28%
Direct
Treatment Costs $12.4
billion 27%
Source:
Adapted from Greenberg, et al., “The Economic Burden of Depression in
1990,” Journal of Clinical Psychiatry, Nov. 1993.
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For
more information
There
are many reputable sources of information about mood disorders. For
additional information about medications, ask a pharmacist for written
inserts or pamphlets that accompany medications you have questions about
or consult the Physicians’ Desk
Reference (PDR) Guide to
Prescription Drugs. For more information about the symptoms of mood
disorders, consult the Diagnostic
and Statistical Manual of Mental Disorders (DSM)
available
at your local library.
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